Hi all!
Well, I've clearly broken my promise to blog more
regularly, but I'm gonna keep trying:) I’m
actually writing this from the airport. I got to go to a short conference for
work and it has been indescribably awesome to finally have time to catch up on
some things and not have to multi-task 24/7.
Ari is doing really well. He's weathered a few ear infections, strep
throat and lots of coughing over the last couple of months, but he's healthy
again for now and quite happy.
We had a really good Easter. Sean got to be be home which
hasn’t happened for a few years so that was a great treat. The Easter Bunny was
especially happy about that!
Prior to that, Ari stole the show in a fundraising fashion
show for his developmental preschool (the state
newspaper even said that, so it's not just proud mama talking). He was supposed to be in the show last year, but that’s
when he was in the hospital. This year’s theme was milestones, so he definitely
had some milestones to show off. I walked with both kids as a very fancily
dressed safety officer to be sure Ari stayed on the stage. Both kids did great.
Rowan was a natural, like last year and loved it. Ari held my hand all the way
down the runway and then dropped it and sat on the floor in protest once we got
center stage….then he got up and started dancing. It was great! I would love to
see a video someday.
For the life of me I can’t remember what this photo was for
from the last couple of weeks, but it makes me smile.
Tomorrow is a big doctor day for Ari. He gets a check up on
his ear tubes and maybe they can figure out why he keeps getting infections
even with the ear tubes. That will likely be followed by a hearing test. It’s
pretty common for kids with Down syndrome to have some degree of hearing loss,
and that can happen for a variety of reasons, including repeated ear
infections, so we like to get that tested often.
Later on Wednesday, I get to meet with Dr. Frye for a
research follow-up appointment. Ari participated in a clinical trial with him
in November assessing mitochondrial function. It’s an unusual trial in that we
get to see his results from the study related tests. I’m very excited to see the
results and hoping it will give us some answers on a variety of things.
Next up, Ari is set to do a vitamin C cleanse and a 6 week
candida diet to heal his gut. This has actually been on the agenda for a couple
of months but life and schedules keep making that difficult. Hopefully after we
hear Dr. Frye’s perspective on all of that, we can choose a date again and this
time some sort of plan will stick.
Meanwhile, we are happy it’s spring in our house. I love
seeing my kiddos grow up. So blessed!
Love to all,
Dorothy
Comments
Post a Comment